Received an email from a random hospital from some distant part of the UK inviting me to register. The email claimed that this random hospital holds my data. It took 3 phone calls to establish that th... Näytä lisää
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Katso, mitä arvostelun kirjoittajat sanovat
I knew nothing about this ill-named organisation until I received three messages from it after a medical procedure as an out-patient. I was unable to access those messages, having never heard of Patie... Näytä lisää
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Can’t praise it highly enough. I used to have to wait a week to get test results from the doctor, now it’s mostly the same day. All my info in one place. Had to give details for a life insurance ap... Näytä lisää
I found this website easy to use and intuitive. I had reason to contact the support team as I somehow ended up with two accounts because I changed my email over the years. The support team responded... Näytä lisää
Yrityksen tiedot
Erilaisten ulkoisten lähteiden tuottama tieto
Patients Know Best (PKB) is Europe’s largest personal health record platform, enabling patients and healthcare professionals to access real-time health information - anytime, anywhere. As the world’s first patient-controlled personal health records system, PKB facilitates borderless, integrated care wherever the patient needs it. That means any healthcare provider, whether in another area of the country or another part of the world, can immediately access all the information they need to support improved clinical decision making and the best patient care. Everything from test results, care plans, real-time monitoring data and discharge summaries, to the patient’s own data - either uploaded from their journal, wearable devices or using symptom tracking, are all available in one patient record. This also reduces the need for professionals to request background information from the patient’s regular healthcare team. In 2020, PKB became the first personal health record (PHR) to integrate with England’s national health platform - the NHS App. This extends the NHS App’s current features and sharing of GP data, to allow patients to access PKB’s full health and care record and functionality, direct from the national NHS interface. For more information on the features and benefits of Patients Know Best, visit www.patientsknowbest.com or email enquiries@patientsknowbest.com.
Yhteystiedot
Cowley Road, CB4 0WS, Cambridge, Yhdistynyt kuningaskunta
- help@patientsknowbest.com
- www.patientsknowbest.com
2,9
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592 arvostelua
On vastannut 87 %: iin saamistaan huonoista arvosteluista
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You can not access the information when you need it most. more importantly you can't rectify wrong information held about you which is life threatening.
Having been fobbed off with sore throat treatment, I have spent several days in hospital with recurring anaphylactic reactions to something with the potential to kill me.. how can my life be held to ransom by an app and a receptionist, whilst I am great full for A&E keeping me alive what has this country become when life threatening false information cannot be changed.. thank you for your reply putting me back to the NHS. This is the main problem. When you have a 15 min life threatening illness the last thing you need is two organisations passing the the blame to each other. Whilst in hospital not one person from nurse to IT specialist could access the app. .. when still under a 15 min life expectancy from an unknown trigger the receptionist spent 10 minutes trying to tell me it's mine or your fault the app cannot be accessed before changing something that allowed limited access. I still can not access the urgent information post sent to me via the app. Again I ask how can it be that some peoples lives can be held to ransom by an app. Simply put..the message sent to me by your app cannot be received via you app.
3. heinäkuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
Hi John, your feedback has come through to the software company Patients Know Best, not to your hospital. We can appreciate how frustrating your situation is. However, please note that we handle technical matters related to the portal and not issues concerning patient care. It would be best to direct your feedback to your hospital so they can assist you further.
Unnecessary stress. Delayed results can be better communicated.
It works, but for certain sensitive blood tests like HIV where the patient has to wait 30-days with random ascension numbers displayed can cause unnecessary uncertainty and stress, especially when all other test results show up.
Got sensitive blood test results after 1 month of anxiously waiting. All other blood tests were displayed on PKB within 24-48hrs so that's good.
The system lacks language and indicators that better explain the delayed results to ease patients. Having the delay and multiple ascension numbers can be easily misinterpreted by a patient especially if they do a quick Google search. Delayed reporting is often associated with something a doctor needs to explain to a patient directly.
The PKB team should discuss internally on how to best present the delayed test result notifications. Other negative reviews also express similar dissatisfaction on this issue.
2. heinäkuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
Hi Ivy, we're very sorry for any distress caused with the delay added to your test result. Some hospitals choose to place a delay on test types that are considered sensitive or diagnostic. If applied, all results for the test type will be subject to the delay, it doesn't indicate that there's anything to be concerned about with your individual results. This is to allow clinicians time to meet with patients directly, if necessary, to discuss the results.
We have passed on your feedback to our product team.
If you have any more feedback or suggestions, please don't hesitate to reach out to our support team at 📧: help@patientsknowbest.come
App is brilliant so why am I not giving…
App is brilliant so why am I not giving it 5 stars? Did a test the other day and usually the result comes up but today:
The results will be available on 25 July 2024 at 16:01
Now as someone who suffers with health anxiety, this is appalling. It may be the lab asking for it but PKB should not allow it! I am now worrying I potentially have a serious disease when it may be nothing?! What a brilliant app, let down by something so silly. If it is negative then I understand a comment but putting a date a month away with no note is not great. Shame as the way it shows bloods history etc. is outstanding.
27. kesäkuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
Hi Sean, thank you for your feedback.
We're very sorry for any distress caused with the delay to your recent test result. Some hospitals choose to place a delay on test types that are considered sensitive or diagnostic. If applied, all results for the test type will be subject to the delay, it doesn't indicate that there's anything to be concerned about with your individual results. This is to allow clinicians time to meet with patients directly, if necessary, to discuss the results.
I hope this helps to reassure you, but if you'd like further support, please get in touch with our support team. If you have any concerns about your results, please contact your GP or clinical team.
This is a rubbish service I have been…
This is a rubbish service I have been waiting 10 days for my blood results and if/ when I get them they don’t report on all the bloods. Patient view was so much better - Oxford have a great system as well much more reliable and informative.
27. kesäkuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
Hi Jon, I see that you've been in contact with our agent, Tarra, regarding this issue. As she mentioned, PKB displays results as soon as we receive them from your healthcare provider. Currently, there appears to be a delay on their end, which is currently under investigation.
Thank you for your patience as we work to resolve this with your healthcare provider.
3 Stars as improving but could do better
3 Stars as Patients Knows Best has improved but could still work and load better.
Main improvements are felt in the desktop version, but mobile access does not work as well.
Both are still a bit of a faff in comparison to the predecessor PatientView but at least a move in the right direction especially with the relatively recent improvements to the Test Results screen.
26. kesäkuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
Thank you for your feedback.
We continuously strive to improve our platform to ensure it's both informative and user-friendly. Your feedback is invaluable in this process, and I will pass your concerns along to our product team.
If you need further assistance or have any more feedback or suggestions, please don't hesitate to reach out to our support team at 📧: help@patientsknowbest.com
Complete waste of time
Complete waste of time. No useful info on there at all that you can't find on the NHS App. Protracted setup but even worse NO clear way to remove it. As far as I can see you have to contact them (somehow) and then hopefully they'll do it for you. And there was I thinking this was the 21st century! 🙄
21. kesäkuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
Hi Arthur. We're very sorry to hear about your experience. Patients Know Best is a personal health record platform. Your hospital(s) decide which data to share with you in PKB. Many NHS Trusts are using our platform to share test results, appointments and much more with patients, others are taking a more phased approach.
Integrating your PKB record with your NHS app allows you to access your hospital data and GP data in the same place. I can see that you spoke with our Agent Tarra who has assisted in your query further.
Was very supportive and helpful.
17. kesäkuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
Thank you so much for your kind words! If you need further support, don't hesitate to contact us.😊
Missed numerous appointments in the…
Missed numerous appointments in the space of 10 year period..
Reported & diagnosed with Crohn's disease in 2014! Nothing never happened. Left to try find my appointments!! Finally did last year 2023:( well done PKB
All through this PKB.. docs sending referrals to hospital & never received a letter about it always went to the app (I was never notified) now getting treated in hospital my Crohn's disease has gotten so bad now!!
Is this claimworthy?
Disgrace of an app...
3. marraskuuta 2023
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
Hello, when your hospital updates your record, we'll send you an email to let you know about the change. This email will give you an indication of what's been updated, such as a new appointment, document, or profile change.
Your NHS Trust continues to send letters by post unless the digital copy is accessed before the print date. Once you’ve seen a letter in PKB, a read receipt is triggered and the hospital refrains from sending a paper copy, saving unnecessary printing and postage costs. If you haven't read the letter in PKB, the paper copy continues to be posted.
Sorry to hear that you’re not receiving letters in the post, we recommend contacting your hospital directly to ensure they have your correct address on file.
I can't access my results easily as I…
I can't access my results easily as I did before!.
16. kesäkuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
Hi Roxy, I'm sorry to hear that you're having trouble accessing your test results. Please contact our support team at help@patientsknowbest.com, and they will be happy to assist you further.
i asked a question and received an…
i asked a question and received an answer within a day
13. kesäkuuta 2023
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
Hi Dean!
Thank you so much for taking the time to leave this 5-star review😊
Tried to log using my normal…
Tried to log using my normal password.Failed. Tried to change password and waited waited waited & nothing happened for 20 minutes. Deleted all references to PKB. Complete waste of time they need to update their systems
12. kesäkuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
Hi John, we apologise for the challenges you've experienced in accessing your records and understand the frustrations this may have caused.
It's possible that the password reset email ended up in your Junk/Spam mailbox. If you still haven't received it, please contact our support team at help@patientsknowbest.com, and they will be happy to assist you further.
Please note that you can also log into PKB using your NHS login account if you've already set this up.
Can't access PKB ,can't reset code
This App is impossible for me to access and reset password, I have never been able to use it its to difficult to work out ,Its a waste of NHS money and needs scrapping, I can never get in it to read my results
12. kesäkuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
We're very sorry to hear about the difficulties you've encountered with accessing your record and the frustrations it has caused.
The password reset will fail if your responses don't match what is held in your PKB record. As the data in your record is kept up to date by your healthcare provider, we recommend that you contact them to ensure they have the correct demographic information on file. Once this has been updated, the change will be reflected in your PKB record.
We're here to help if you need any further support: help@patientsknowbest.com
I cannot see any investigation reportsNot satisfactory
I cannot see any investigation reports, only I can see appointments but not all
5. kesäkuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
Hi Shishir. We are sorry to hear that your NHS trust is not sharing your investigation reports in your PKB record. Our mission is for every person to have access to their health record and to use this information to manage their health and care. Many organisations are using our platform to share test results, appointments and much more with patients, others are taking a more phased approach. Please can you get in touch with our support team so that we can help you? Once we know which healthcare organisation you are under the care of, we can advise on the data types they are currently sharing, and what they are planning to share next. The email that you need is help@patientsknowbest.com
You only cover about 50% of my…
You only cover about 50% of my problems. You caused me problems on my recent rigid cystoscopy by not showing my treatment at Guys (which I have been attending for years) when the consultant attending to me could not trace on my records any details of my heart problems.
9. toukokuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
Thank you for sharing your concerns. We're very sorry to hear about your experience. PKB are the software providers for this platform, our mission is for all patients to have a copy of their health record. Your hospital data is managed by your NHS Trust(s), they decide what data is shared with you in PKB. Some are using all of our functionality, others are taking a more phased approach. Guys’ Hospital are using a different electronic patient record system.
It's unfortunate that the consultant attending to you couldn't find details of your heart problems in their records. We recommend addressing this directly with Guys Hospital, as they can investigate this matter further and ensure all necessary information is available for your care.
It's great to have access to blood test…
It's great to have access to blood test results again!
This new site is a different layout to previous site (Patient View)but you can soon find your way around.
Delighted to have this facility again. It gives so much reassurance. Also I got an email to tell me when my results had been updated 😀
Initially all of my results were not there but they are all there now!
Thank you so much
😀😀😀😀
31. toukokuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
Thank you for your wonderful review! 😊
We’re so glad that your PKB record is helping you to feel reassured and stay informed about your health. It's great that you’re finding your way around the new layout and that everything is working well for you.
If you ever have any questions, we’re always here to help. Thank you for sharing your experience!
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Really helpful and prompt
Really helpful and prompt in resolving my query
30. toukokuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
Thanks for the 5-star review, Gaynor!
Your kind feedback is much appreciated, and we're here to support you whenever you need us.
Shockingly bad
Shockingly bad, I missed a hospital appointment by 4 weeks. Try to close your account and you can’t. Letter of complaint to CEO tomorrow.
Edit, Tarra will close my account thank you.
29. toukokuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
Hi Phil,
We are sorry to hear that you missed your appointment.
Your NHS trust has a read receipt function to ensure you don't miss any correspondence. If you read your letter in your PKB record, the read receipt is triggered, and the hospital won't send you a paper copy, saving on printing and postage costs. If you do not read your letter in PKB, the read receipt will not be triggered and the hospital will continue to send a paper copy.
We see that you logged a ticket with our support team and that our agent Tarra has reached out to you. Please respond to her so she can assist you further.
Excellent customer service
I made an enquiry after experiencing difficulties updating my address. The issue was resolved quickly and I was kept informed throughout.
23. toukokuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
Thank you for your 5-star review! ⭐ We're glad to hear your address query was resolved quickly!
Utter rubbish
Utter rubbish, I have got endless emails to say my account has been updating and there has been nothing added for this year and I have had plenty of appointments. The website is awful and about as clear as mud
23. toukokuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
Hi Karen.
We're very sorry to hear about your experience. Patients Know Best is a platform used by your NHS Trust to provide patient access to health records. It requires input from your healthcare providers in order to be populated with data.
If the update did not add any clinical data to your record, then it's likely that your demographic information was modified. We understand your frustration and want to ensure your record is accurate and useful.
Please reach out to us at help@patientsknowbest.com so we can assist you further and address your concerns.
I am waiting for blood test results but…
I am waiting for blood test results but no news! This is a repeat of what happened twelve .oaths ago. Why can't PKB be scrapped so we can return to the much better PatientView? PKB is ot a service, just a money making scheme.
20. toukokuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
Hi David,
I'm really sorry that you have experienced a delay in receiving your results. We will notify you the moment we receive your data.
Queries regarding missing or delayed data should be sent directly to the UKKA team for investigation. Their email address is: pkb-support@ukkidney.org
Take care.
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