Received an email from a random hospital from some distant part of the UK inviting me to register. The email claimed that this random hospital holds my data. It took 3 phone calls to establish that th... Näytä lisää
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I knew nothing about this ill-named organisation until I received three messages from it after a medical procedure as an out-patient. I was unable to access those messages, having never heard of Patie... Näytä lisää
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Can’t praise it highly enough. I used to have to wait a week to get test results from the doctor, now it’s mostly the same day. All my info in one place. Had to give details for a life insurance ap... Näytä lisää
I found this website easy to use and intuitive. I had reason to contact the support team as I somehow ended up with two accounts because I changed my email over the years. The support team responded... Näytä lisää
Yrityksen tiedot
Erilaisten ulkoisten lähteiden tuottama tieto
Patients Know Best (PKB) is Europe’s largest personal health record platform, enabling patients and healthcare professionals to access real-time health information - anytime, anywhere. As the world’s first patient-controlled personal health records system, PKB facilitates borderless, integrated care wherever the patient needs it. That means any healthcare provider, whether in another area of the country or another part of the world, can immediately access all the information they need to support improved clinical decision making and the best patient care. Everything from test results, care plans, real-time monitoring data and discharge summaries, to the patient’s own data - either uploaded from their journal, wearable devices or using symptom tracking, are all available in one patient record. This also reduces the need for professionals to request background information from the patient’s regular healthcare team. In 2020, PKB became the first personal health record (PHR) to integrate with England’s national health platform - the NHS App. This extends the NHS App’s current features and sharing of GP data, to allow patients to access PKB’s full health and care record and functionality, direct from the national NHS interface. For more information on the features and benefits of Patients Know Best, visit www.patientsknowbest.com or email enquiries@patientsknowbest.com.
Yhteystiedot
Cowley Road, CB4 0WS, Cambridge, Yhdistynyt kuningaskunta
- help@patientsknowbest.com
- www.patientsknowbest.com
2,9
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592 arvostelua
On vastannut 87 %: iin saamistaan huonoista arvosteluista
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Tutustu arvostelujen ja arvosanojen lähteisiin, pisteytykseen ja moderointiin.
There was no 11 or 12 questions to…
There was no 11 or 12 questions to answer . Then when i tried to explain i was waiting on test results my messages failed
15. toukokuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
Hi Robert,
It sounds like you're having trouble completing a questionnaire you've been sent from your hospital team, rather than with our platform. We recommend reaching out to your local hospital team for assistance, their contact details should be on the email you received regarding the questionnaire. If you can't find the contact details, our support team would be happy to guide you.
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Limited Access
Limited Access
I like the idea of having access to my records. But the restrictions of the GP and hospitals not using the same platforms is not useful. I was happy I received a reply with an explanation to my issue.
1. toukokuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
Thank you for your feedback! We're glad to hear you like having access to your records and that you received a helpful explanation to your issue. We understand the frustration with GP and hospital platforms not being fully integrated and are actively working on solutions so that you can see all of your data in one place. If you have any further questions or need assistance, please feel free to reach out.
Take care,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
pretty good service, would use again
The service was pretty good. Could have been a bit quicker in response
10. toukokuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
Thank you for your feedback on our service! We are a small team and whilst we do aim to reply within 1 working day, this isn't always possible during busy periods. We appreciate your patience and if you have any further questions or need assistance, please don't hesitate to reach out.
Lisa
📧: help@patientsknowbest.com
Patients Know Best
They answered quickly and passed on to…
They answered quickly and passed on to relevant professionals
10. toukokuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
Thank you for your review, Stella! ⭐ We're glad to hear our team responded quickly and connected you with your hospital team.
Best regards,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
She's a winner!
At last Tarra from PKB been able to sort out my problems with Harrogate District which as I suspected was an email address written wrongly. I hope I am able to use the site OK now. I cannot praise enough Tarra's efforts on my behalf.
8. toukokuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
Thank you for your 5-star review, Jan! ⭐ We're thrilled that Tarra was able to resolve your issue, and will pass on your kind words about her efforts. The PKB support team are always here to help if you need us.
Best regards,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Fast response to my query and resolved…
Fast response to my query and resolved satisfactorily I am enjoying being able to see my blood results etc I didn't realise this service existed so thanks.
7. toukokuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
Thank you for your 5-star review! ⭐ We're glad to hear your query was resolved quickly and you're enjoying access to your test results. Welcome to PKB!
Best regards,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
No results - terrified
I received an email notification that my PKB record had been updated. I logged on via the NHS app and all it states is 'Histology' the person who input it and 'no results until 24 June'. This has utterly terrified me as my test was a breast biopsy and I am now thinking the doctor wants to give me bad news on my follow-up appointment day. Waiting for biopsy results is bad enough without the rollercoaster of no results. I suffer from an anxiety disorder and my anxiety is off the scale.
9. toukokuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
We're very sorry for any distress caused. Some hospitals choose to place a delay on test types that are considered sensitive or diagnostic. If applied, all results for the test type will be subject to the delay, it doesn't indicate that there's anything to be concerned about with your individual results. This is to allow clinicians time to meet with patients directly, if necessary, to discuss the results.
If you have a test result that has been delayed, the time and date it will be available is displayed so that you know when to check back.
I hope this helps to reassure you, but if you'd like further support, please get in touch with our support team. If you have any concerns about your results, please contact your GP or clinical team.
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Quick email response
Quick email response, however I still find the service less helpful than patientview where the website was easier to navigate and track readings plus far more easy to find explanations for results. PKB sends email with link but I still have to login and then locate update without any signage.
27. huhtikuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
Thank you for sharing your feedback. Our Tests page offers a 'Latest' view showing the most recent test results and a 'Trend' view that allows you to track changes over time through graphical representations. Each test result on your record has an ‘About test’ link which directs you to a detailed explanation about why the test might be required and what the results might mean.
We understand the importance of easy navigation and are here to assist you in getting the most out of your PKB record. For more personalised support or further suggestions on how we can improve, please do not hesitate to contact us at help@patientsknowbest.com.
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
I asked a simple question for advice
I asked a simple question for advice, and basically told to book an appointment with my GP , which I would have done anyway, I just needed advice to save booking and seeing a doctor wasting their time.
19. huhtikuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
Thank you for your feedback. We’re sorry to hear about your experience. PKB is a software company, we provide a personal health record platform which is used by patients and their healthcare providers. The PKB team can help with technical support with using the platform, but we are are unable to provide clinical advice. You can contact your clinical team via the 'events and messages' section of your PKB record, as long as they have enabled this feature for their patients.
If you have any questions about using our platform, please reach out to us at help@patientsknowbest.com.
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Excellent Support Service…
My previous email provider no longer exists and I was unable to log onto Patients Know Best to enable me to see hospital appointments, letters etc. Stuart Chappell at PKB Support Services was excellent and so very helpful to me. I think that Stuart is a great team member, always replying promptly and efficiently to my queries. Following Stuart’s and the Teams help, I am now successfully able to log into PKB. Thank You
25. huhtikuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
Thank you for your 5-star review, Janet! ⭐ We're delighted that Stuart provided excellent support, enabling you to log in and access your hospital information. We're here to help!
Best regards,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
I have received an email to say my…Complete waste of time! :-(
I have received an email to say my record has been updated. So I looked up my password - logged in.. and NOTHING! It invited me to put my own diagnoses and allergies etc onto the record. You'd expect the info to be populated by the NHS (bearing in mind their logo is being used). I have just come back from a Mammogram (I had breast cancer 3 years ago), and thought maybe there would be some information to follow up on that. It just isn't good enough. Complete waste of time! :-(
23. huhtikuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
Hi Vivian. We're very sorry to hear about your experience. Patients Know Best is a platform used by your NHS Trust to provide patient access to health records. It requires input from your healthcare providers in order to be populated with data. If the update did not add any clinical data to your record, then it's likely that your demographic information was modified. We understand your frustration and want to ensure your record is accurate and useful. Please reach out to us at help@patientsknowbest.com so we can assist you further and address your concerns.
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Another expensive NHS system failure
Very unhappy.
I am awaiting urgent test result.
Have been sent an email telling me my record has been updated but can't access the system either directly or through .my NHS app.their advice is to go through the hospital dealing with my treatment to gain access but hospital switchboard have never heard of them
19. huhtikuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
I'm sorry to hear about your experience. We would like to address any issues you've encountered with accessing your record. Please reach out to us at help@patientsknowbest.com so we can assist you.
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Trying to register through the NHS…
Trying to register through the NHS Android app was a complete waste of time. Failed every time. Gave up and tried the web login which finally worked.
However, what is the point of this website. Couldnt retrieve any information from recent tests.
18. huhtikuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
Thank you for sharing your feedback. I’m glad you managed to register, but I'm sorry to hear that you had trouble with the NHS app route initially.
As for your test results, the information available in your record depends on what your healthcare provider has chosen to share at this time. Some are sharing all data, others are taking a more phased approach.
We’d be happy to help you check if your provider is sharing test results or if they have plans to soon. Please email us at help@patientsknowbest.com.
Lisa
Patients Know Best
📧: help@patientsknowbest.com
Poor Design
Patients Know Best is clearly, cleverly designed not to function. Asking for photo ID, then a video quoting 4 numbers, then saying they will reply in 12 days - all you want not do is read the letters that come from the hospital or GP surgery and this app makes it close to impossible. My guess is that it is another Tory racket.
16. huhtikuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
Thank you for your feedback, Clifford. It's important to clarify that what you've described is the registration process for creating an NHS login.
You can indeed self-register to PKB using an NHS login account, but you can also use our direct registration routes via invitation from your healthcare provider. Our support team can arrange this for you, please do get in touch 📧: help@patientsknowbest.com
Best wishes,
Lisa
Patients Know Best
An easy app to use plus it holds a lot…
An easy app to use plus it holds a lot of useful information. Very impressed.
16. huhtikuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
Thank you so much for the review, Coralie! 🌟 We're happy to hear that accessing your PKB record has been smooth and informative. If you ever have suggestions or need assistance, feel free to reach out to us at 📧: help@patientsknowbest.com.
Best wishes,
Lisa
Patients Know Best
Patient Knows Best has been a lifeline!
Patient Knows Best has been a tool integral to my healthcare journey for the past six years. It all started when my medical team set me up with an account after I was put on Total Parenteral Nutrition (TPN), IV artificial nutrition. Initially, I thought it was convenient to access my blood results. However, Patient Knows Best has evolved over time into a vital asset in managing my health effectively.
One of its most remarkable (and helpful features in my journey) features is its proactive approach to healthcare. I get frequent notifications every time test results come through; these are detailed and comprehensive regarding my blood results. They break it down into everything they have tested for - iron, vitamin D, etc. Although it gives me the direct number, as a patient with no medical training, I am still able to quickly tell if something is out of range as the app gives me what my recommended range should be as well as graphs where you can compare previous results with green and red markers that show you how out of range it is. I can access my results anytime, so I often identify potential issues before they are evident to my medical team.
This capability has proven invaluable, particularly concerning infection markers associated with my TPN treatment. Suppose I am worried or concerned about a result. In that case, the app's messaging system allows me to contact my healthcare providers directly, enabling prompt interventions when necessary. There was a time when my infection markers were up, which ended up being a Central line infection (which is a severe medical emergency). After messaging my team through the app, they contacted my local A&E. After explaining the seriousness of the situation, they could fast-track me through.
Patient Knows Best has advocated for my needs as a young woman navigating the healthcare landscape. If I need help accessing any care outside my usual medical team, I can show previous consultant letters, results, or, if needed, a message of support from one of my team. Additionally, Patient Knows Best empowers me to take charge of my treatment journey. Currently, I am working on reducing my PN. By providing direct communication channels to my consultants and healthcare team through the app, PKB has helped accelerate this process. I can also track all my upcoming doctor's appointments and tests.
Only recently have I learned that a patient knows best is a B-corp business rather than attached to the NHS. For many years, I was always under the impression that it was a part of the NHS because of the ease with which it connects me to my team and medical results and how professional it is. It is an ingenious and vital platform that puts patients in control of their healthcare—something so important when you live with a chronic long-term health condition like I do and it has strengthened my relationships and trust with my team!
4. huhtikuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
Hello Ellie,
Thank you so much for taking the time to leave this heartfelt and insightful review. It's wonderful to hear how Patients Know Best has become a vital part of your healthcare journey. Your story inspires us, and perfectly encapsulates the PKB mission to empower patients with the knowledge and tools to manage their health, fostering collaborative and informed relationships with healthcare teams.
We're very grateful for your enthusiasm and trust in us. If there's anything more we can do to support you, please reach out anytime.
Thank you once again for sharing your experience.
Best regards,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
The very fast and effective intervention of a lady employee.
The lady employee responded very promptly and effectively. She sort my problem very quickly. I thank her for everything.
2. huhtikuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
Hello Jamie,
Thank you for your five-star review! We're delighted to hear that you received prompt and effective support from the PKB team.
If there’s anything more we can help you with, please feel free to reach out.
Best regards,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
An absolutely excellent resource
An absolutely excellent support for people with chronic conditions - helps patients AND their carers and loved ones to better understand and so cope with and manage living with a chronic condition. We are so very, very grateful for this resource and just hope that it can be made available through the NHS to ALL people living with ALL chronic conditions. Thank you so very much!
3. huhtikuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
Hello Mary,
Thank you so much for your glowing review! We're thrilled to hear that Patients Know Best has been such a valuable resource for you, your carers, and loved ones. It's wonderful to know that our platform is making a positive difference.
Feedback like this inspires us to keep improving and advocating for our mission: https://patientsknowbest.com/mission/
Thank you once again for your kind words.
Best regards,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Speaking up for Patients Know Best
Patients Know Best, confusingly retitled Care Information Exchange (CIE) in NW London, is brilliant! It has transformed access to my personal health information, and to appointment records. Sadly CIE gets blamed for things it is not responsible for, such as the NHS-imposed 28 day delay in accessing some key data (eg PSA), With perseverance, at least some of these problems can be overcome via the NHSApp. It's unfair to blame CIE for these limitations. Also worth pointing out that they have a most responsive Help service if anything goes wrong, and are way ahead of their competitors (and the NHS) in already achieving Net Zero. Overall I think they are a great organisation.
28. maaliskuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
Thank you for your fantastic review Charles, and for highlighting the benefits of using PKB, (rebranded as Care Information Exchange in North West London). We're delighted to know that you've found great value in accessing your health information through our platform, and we appreciate your kind words about our support team.
If you ever need assistance or have further feedback, we're always here to help.
Best regards,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Quick answer
My query was answered quickly with advice on what to do next which was to contact the hospital.Again a very helpful receptionist solved my problem.
27. maaliskuuta 2024
Oma-aloitteinen arvostelu
Vastaus yritykseltä Patients Know Best
Thank you so much for your kind words, Pamela! We're delighted to hear that our team was able to assist you swiftly and effectively. If you need further support, don't hesitate to contact us.
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
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